Had a memorial for my son, Kyle, yesterday. Saddest days ever.
He battled cancer for more than two years. He was a father of
two and was no longer serving in the Air Force. The ocular melanoma grew quickly. In a few
weeks, his left eye was removed. Horrific, but no cancer had spread to his
brain. The cancer metastasized in his abdomen near the kidney, which is very
rare as it usually spreads to the liver or the lungs. Now it was uveal
melanoma. The immunotherapy was successful and the tumor died. We celebrated when
the tests and scans all came back clear.
He even took summer courses at the local college.
I think it was three PET scans that came back clear and they
were going to stop treatments. But the
last test showed a spot on his liver.
Then it was two spots. More aggressive treatments were started. Then an
ablation to burn off the smaller tumor.
This made the liver swell and the larger tumor grew and the smaller one
did not die.
No one talked openly about the severity of it. I looked it up to learn that most people only
live 5 to 7 months once it is in the liver.
It is fast-growing and aggressive.
Nothing worked. No surgery was
done as the swollen liver made it impossible to discern where the tumor started
and ended. Two surgeons rejected the surgery.
He became very sick from the treatments, and by the time
he got to a new cancer facility, it had spread to more than fifty percent of
his liver. He was no longer a candidate
for clinical trials.
Again, no one was open or honest about the facts, not even
the doctors. During the last 9 months,
we all tried to be strong for the kids. We
watched my son suffer terribly for the last two months as his kidneys shut
down. Dialysis worked for a couple of weeks. He was able to hold some food down
and had less pain. Even his last week in
the hospital they gave us false hope with more dialysis and new treatment plans
for the liver.
I treasure the precious
time we shared. The times I stayed with him in the hospital while his wife took
care of the kids, and the times they all stayed at our house. He shared his strong faith, telling me it was
going to be okay because he would get a miracle and get to stay here for his
family, or he would get to be with Jesus and be completely healed.
Rivers of tears have been shed. Complete emotional meltdowns are less frequent. The strangest things can trigger it. My heart pounds, races, and aches. Sharp pains stab my chest sometimes. Feels like I'm shattering apart. Physical collapses too. I have had to lay down on the floor a couple of times and wait it out. Weak from not eating much. No appetite and it makes me feel sick to my stomach.
Yet, I’m also thankful he is
no longer suffering. I remind myself I will see him again and of all the wonderful things he is doing now. That helps me shake off the dark thoughts.
My granddaughter pushes me away and shuts me out (which is
typical for a 14-year-old). She was often moody and shut others out for the
past two years. Understandably so.
My grandson (7 years old) wants to comfort me. I treasure his little hugs and tight squeezes.
My daughter-in-law, well, I have no clue. I know she is angry at the world, and her
whole world is upside-down, but so is mine.
It feels like I can do nothing right.
We are both defensive and overreacting, I’m sure.
As I share from my heart, my raw, honest thoughts and
feelings, please remember I have an irrational mind these days.
I wasn’t included. I
showed up anyway for the meeting at the funeral home to discuss the services. My
ex-husband and I agreed beforehand to let her make the decisions.
My precious pictures of my young son were not wanted. But I had to share them. So many good memories. Too many I suppose. I told the lady preparing the slide show to
delete some of mine if needed. (I didn’t care so much anymore. I had my own copy for me and my family.) She suggested we mix mine up with my ex-husband’s and my daughter-in -law’s images instead of doing a timeline. That way if some of the images didn’t get
shown at the end it would be random.
That sounded good to me and seemed to help the situation.
I spent hours going through my old photos and taking
pictures of them to have them on my phone. Then I emailed them to myself so I could
edit them before I put them on the jump drive. Then I took them to the funeral home.
It was a wonderful way to keep busy and not feel useless. Sometimes it didn’t stop the tears, but I
relived beautiful memories.
I could not understand why anyone would object to the
precious baby pictures and childhood pictures of my son. I was deeply hurt on top of my already broken
heart from his passing. I had very few
images that included me because I was the one who took the pictures. Many of
them were with his brother, cousins, best friends, and/or his dad. I wanted everyone to be included that loved
him.
Then there were the framed images to put on the table. I am a professional artist. I also did custom
framing for years. I put the images in expensive frames and custom-cut the
glass, mats, and foam-core backing. Again,
I was frustrated, hurt, and even angry when they weren’t wanted. I offered to
frame some of hers too. I finally said
we didn’t have to display them because we had the slide show. She decided she wanted them, so I downsized
mine and did some of hers. It turned out
nice and not crowded. She was right
about that; it can get too crowded and overwhelming.
By now I was over feeling rejected, left out, and hurt. I
was angry. Of course, I recognized it
was not at her, it was just at everything. But I still thought she was wrong to
not accept my help or input on things. I
couldn’t even answer questions while helping to decorate the church. That sent me into a fit of tears and I had to
leave for a bit.
It all turned out amazing. She honored him well. And so did I.
She did military honors for him and had three of his pastors share.
That was so good to my soul.
However, no one asked me about my stories. He was a prayer warrior by 6 years old. He had gifts of healing for others. He saw things in the spirit realm and drew
pictures of the angels he saw. He was hit by a car at 7 years old and the bike
was mangled up under the car and he was not hurt. He was sitting on the side of the road in a
daze. “An angel caught me, Mama, it
pulled me away from the car!” And his friend saw him “float” away from the car. (Those are just a few.)
So many wonderful things I wanted to share. At least
one. But not even one was shared. Again, I was confused and hurt.
I want to honor my
son too. I want to share too. I want to be
allowed to be honest about how I feel and not be scolded or misjudged for it. I
might write some stories about him. But I might not be able to. We’ll see.
Pray for me, please.
My heart is in a million pieces.
Sometimes I can’t breathe. I know
he’s in a better place, and I know he is dancing with Jesus, and seeing all our
loved ones, but I miss him so much.
Obituary information for Kyle Marvin Jenkins